Global Patient Engagement & Communication Manager

Statistics show that women and underrepresented groups tend to apply to jobs only if they meet 100% of the

qualifications

. Sobi encourages you to change that statistic and apply. Rarely do candidates meet 100% of the

qualifications

. We look forward to your application!

At Sobi, each person brings their unique talents to work as a team and make a difference. We are dedicated to developing and delivering innovative therapies to improve the lives of people who live with a rare disease. Our edge comes from our team of people and our commitment to patients.

Our mission and culture at Sobi North America get us excited to come to work every day, but here are a few more reasons to join our team:

• Competitive compensation for your work
• Generous time off policy
• Summer Fridays
• Opportunity to broaden your horizons by attending popular conferences
• Emphasis on work/life balance
• Collaborative and team-oriented environment
• Making a positive impact to help ultra-rare disease patients who are in need of life saving treatments

Job Description

The Global Patient Engagement & Communication Manager is accountable for establishing global Patinet Engagement (P.E.) programs and leading the cross fertilisation of patient engagement best practice with affiliates and further establish the role within the businesses. The role will enable country localisation and execution of agreed P.E strategies. The role will act as a point of contact with external patient organisations and other similar bodies to help develop the presence and recognition of Sobi as a credible partner.

Key Responsibilities

• Support and drive defined tactics and execution of the Strategy and Tactical Plan by working in close collaboration with cross functional teams within the Global organisation and the affiliates
• Ensure day to day activities are executed in alignment with major milestones and KPIs and Sobi values to support the achievement of community engagement objectives. Activities include: execution and implementation of tactical developments, supporting country execution and adaptation, budget monitoring and KPI monitoring
• Secure that local market insights and needs are reflected into Global tactics development and implementation
• Provide tactical support to affiliates as needed to ensure successful execution of Global strategies and tactics to fully satisfy local business needs. Assist affiliates for development of local tactics/programs as needed to ensure consistency and alignment to Global strategies
• Administer grant and sponsorship process for HCO/Patient organisations; maintaining clear and concise communications with requesting groups on the submission and approval process.
• Operate with high ethical standards in line with the Sobi corporate values and SOPs by ensuring ongoing completion of all required initial and ongoing training in local regulations and policies, and adherence to those regulations and policies

Qualifications

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Qualifications

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**Education & Experience**

• University degree level education in medical or science-based discipline
• Minimum 3 years' experience in specialty care within patient advocacy or medical communications
• Demonstrated experience managing complex engagement and activation projects from initiation to completion
• Proven experience in project planning, budget management, and database administration

**Skills & Knowledge**

• Fluency in written and spoken English with strong presentation and articulation abilities
• Proficiency in MS Office programmes
• Excellent stakeholder relationship management and multi-stakeholder project coordination skills
• Strong oral and written communication abilities

**Personal Attributes**

• Alignment with company values: Care, Ownership, Ambition, Urgency, and Partnership
• Flexibility and ability to manage change in uncertain environments
• Cross-cultural leadership and team working capabilities

Additional Information

All Sobi employees need to demonstrate behaviors in line with Sobi's core values: Care, Ambition, Urgency, Ownership and Partnership. Are you ready to be on the Sobi team? Come join a culture that empowers every person to be the person that makes a difference for rare disease.

Why Join Us?

We are a global company with over 1,700 employees in more than 30 countries and are committed to the societies where we operate. With a deeply skilled management team directing our day-to-day wins, and a Board with a stellar track record, we’re ready to take on the world’s diseases, ailments and adversity. Our people believe they have the power to make a positive impact in others’ lives because that’s exactly what we do here. If you’re seeking a career that taps into your talents in a way that makes the world a better, healthier place, we just may have a job for you.

We know our employees are our most valuable asset, and our culture conveys that. We offer a competitive benefits package, to support the health and happiness of our staff.

Sobi Culture

At Sobi, we refuse to accept the status quo. This is because we have witnessed first-hand the challenges facing those affected by rare diseases, and have used this knowledge to shape our business to find new ways of helping them.

As a specialized biopharmaceutical company, we are dedicated to rare diseases. And we see this focus as a strength. By effectively turning our research into ground-breaking treatments, we help make medicine more accessible and open up more possibilities for patients and more opportunities for those caring for them. This has been our approach since day one, but we know we can’t change the world of rare diseases on our own. Accomplishing this requires strong partnerships with patients, partners and stakeholders across the entire value chain. Together, we define how our business can create solutions that serve the needs of those affected by rare diseases while facilitating sustainable growth.

An Equal Opportunity Employer

Sobi is an Equal Opportunity Employer and prohibits discrimination and harassment of any kind. All employment decisions at Sobi are based on business needs, job requirements and individual

qualifications

, without regard to race, color, religion or belief, national, social or ethnic origin, sex (including pregnancy), age, physical, mental or sensory disability, HIV Status, sexual orientation, gender identity, protected veterans and/or expression, marital, civil union or domestic partnership status, past or present military service, family medical history or genetic information, family or parental status, or any other status or protected groups by the laws or regulations in the locations where we operate.

Sobi is an affirmative action and equal opportunity employer. Disabled/Veterans. If you are a qualified individual with a disability or a disabled veteran, you may request a reasonable accommodation if you are unable or limited in your ability to use or access this website to apply for a vacancy as a result of your disability. You can request reasonable accommodations by sending an email to [email protected]

COVID-19 Policy

For the safety of our employees and all individuals with whom we interact professionally, Sobi North America requires all new hires in the U.S. to be fully vaccinated for COVID-19 with proof of vaccination status. We will consider requests for reasonable medical or religious accommodations, as well as any state-specific exemptions, as required by applicable law.